Non-fiction anthology of essays and memoir by people who grew up disabled in Australia
Note: in this review I used the terms disabled person and person with a disability interchangeably to reflect that some people prefer person-first language and some people prefer identity-first language
Content warning: bullying
I received a copy of this eBook courtesy of the publisher. I was really excited to receive a copy of this book because I had read another book in the excellent “Growing Up” series. I also read the editor’s memoir and was very confident that this was going to be a well-curated collection.
“Growing Up Disabled in Australia” edited by Carly Findlay is an anthology of short autobiographies by 47 disabled people. The contributors, who come from an incredibly diverse range of backgrounds and cultures, have a very diverse range of disabilities and perspectives. There are some well-known people including Senator Jordan Steele-John, and plenty of people who are not so well known but whose stories are just as important.
This is a really well-rounded collection that showcases the myriad of experiences people with disability have in this country. Disabilities can affect mobility, senses, learning, mental health, chronic health and cognitive ability. They can be caused by genetics, illnesses or injuries. Something that I think a lot of people don’t consider is that people may have more than one disability, and I thought that Dion Beasley’s piece To Lake Nash and Back about growing up Aboriginal, Deaf and with muscular dystrophy in the Northern Territory surrounded by love, family and dogs particularly captured this intersectional experience and the importance of accessibility and community. C. B. Mako uses free verse poetry in December Three to succinctly how a person with two disabilities who is also a carer, a parent and a member of the migrant community can be excluded from all of those identities.
This book is full of exceptional creativity and I really enjoyed the variety of styles each piece was presented in. Kerry-ann Messengers two poems ‘Life Goes On’ and ‘The Blue Rose’ explored the depth of emotional reaction, positive and negative, that people have towards her as a person with Down Syndrome. Tim Slade’s poem A Body’s Civil War explores the sense of destabilisation living with auto-immune conditions where your body attacks itself. I really loved Sarah Firth’s comic Drawing My Way which gave a practical example of alternative ways information can be presented to assist people with learning disabilities like dyslexia.
Although there each contributor’s experience is unique, nuanced and impacted by other factors such as race, gender, class and cultural background, there were common themes that wove their way through the book. I was surprised at how many contributors wrote about the significance of animals, particularly dogs, in staving off feelings of isolation and loneliness (though I particularly enjoyed Iman Shaanu’s subversive piece Blurred Lines where she writes “For the record, I hate dogs and would prefer a guide cat if that was a thing”). Hippotherapy by Alistair Baldwin was a particularly wry piece about the ubiquitous experience of horse-riding as an activity for disabled kids. At a time when everyone is talking about vaccinations, it was really poignant to read about two contributors, Gayle Kennedy and Fran Henke, who each wrote about the lasting impact of contracting polio, a disease that has been eradicated in Australia through vaccination programs but that continues to affect people of older generations.
However two of the common themes that were the hardest to read about were bullying and lack of accessibility. Jessica Newman-Marshall’s piece Dressing to Survive describes the cruel judgment and bullying she received as a person with a disability that affects not just mobility but causes her to have a very low BMI in a world that constantly scrutinises women for their weight. Kath Duncan, writes in Born Special about the prejudice and bullying she experienced growing up with missing limbs and reclaiming the word ‘Freak’ for herself.
However not everyone with a disability is bullied. Belinda Downes, in writing about her facial difference and disability in Having a Voice, reflects on how it is not her appearance that has made things most difficult for her, but rather people in her life deciding on her behalf what is best for her in terms of corrective surgery and accessibility needs. In Forever Fixing, El Gibbs writes about living with the chronic skin condition psoriasis and how learning about the social model of disability helped her to find a community and see barriers to access, rather than herself, as the problem.
There are a multitude of other things that I could write about this book, but I will finish off to say that this is an incredibly important work that highlights the fact that there is no single disabled experience and that the biggest barriers for people with disabilities are systemic.
Tinted Edges 